This week

Hello all! It's me... Candi :) I am back!! Thank you sooooo much to Kim for updating while we were in the no (bad) internet zone! {She will be back at it this weekend} Our plan for this week is to enjoy being home and wait. We are supposed to see changes from the IVIG in as long as 10-14 days. As I type we are finishing up day 9. We have seen minimal changes. We are thinking her really bad times are starting to be shorter... and she seems to be pretty good about 70% after 9pm until bedtime. We don't know??? We try to sit and ponder things such as what activities she does RIGHT before a bad time, or what did she eat, or what her sleep cycles were... but we just can't find a rhyme or reason for any of it.

Reese has an appointment for this Friday back up at Mayo with her Neurologist. He is going to check her iron and a possible gluten allergy with a blood test. Then if we are seeing the IVIGs working they will give her another three days worth of treatment. If they don't seem to be working we will be exploring other treatments and trying to figure out what the heck is causing it!!

Even at home we feel your love!! We had a friend who I have somewhat lost touch with bring us a warm meal tonight. Reese received a box in the mail today... it was heavy... it was FULL!!! It was a box of hand drawn/ handmade cards from an ENTIRE Elementary school in Illinois. Thank you so much Christine for doing this! You don't know how amazing a box of construction paper cards can make a person feel, until that person is you.

Thank you again for all of the amazing support and prayers. We love you all so much! And even though we are frustrated, angry, or sad these everyday gestures help us through each day!!