Reese has an appointment for this Friday back up at Mayo with her Neurologist. He is going to check her iron and a possible gluten allergy with a blood test. Then if we are seeing the IVIGs working they will give her another three days worth of treatment. If they don't seem to be working we will be exploring other treatments and trying to figure out what the heck is causing it!!
Even at home we feel your love!! We had a friend who I have somewhat lost touch with bring us a warm meal tonight. Reese received a box in the mail today... it was heavy... it was FULL!!! It was a box of hand drawn/ handmade cards from an ENTIRE Elementary school in Illinois. Thank you so much Christine for doing this! You don't know how amazing a box of construction paper cards can make a person feel, until that person is you.
Thank you again for all of the amazing support and prayers. We love you all so much! And even though we are frustrated, angry, or sad these everyday gestures help us through each day!!